Our Gluten Free Journey – Prologue

Today marks the end of a full month on a gluten free diet. We see the allergist tomorrow to find out where we go next. But it has been a very interesting month!

Why did we go gluten free? LegoFan was diagnosed with several food allergies and asthma in his early years, some life-threatening. So I guess it makes sense to go back to the prologue instead jumping right in to Chapter One.

Allergy - LegoFan

When LegoFan was a baby, he was nursed exclusively until he couldn’t get enough nourishment. I had to start adding cereal at a very early age. He, whether nursing or eating cereal, would develop these horrible rashes on his face and nothing would make them go away. The pediatrician suspected allergies but told us we couldn’t test him until he was a year old.

At one year, he was finally tested. We were blessed to get in to see one of the top allergy specialists in the country at the University of Maryland Medical Center. She was so thorough and asked the right questions. We left with the diagnosis that LegoFan was allergic to eggs, the deadly peanut, and garlic. Garlic was the one that shocked me. Don’t get me wrong, I was horrified over the other two and worried what his life would be like. But it was the garlic that seemed just weird; random. I mean LegoFan has some Italian blood in him; how can he be allergic to garlic? But it was the allergist asking the right questions regarding flare ups that led to her even testing for garlic.

Allergy - Eggs

That was the beginning of our journey with food and the challenges it has had for my son.

At age two, he was given a monitored food challenge to see what effects, if any, the egg would have on him. He “passed” and was cleared to eat foods with eggs in them. I have a great photo (before digital cameras) of him eating his first chocolate chip cookie and ending up with chocolate on his face! He loved it!

He would eventually be cleared of his garlic allergy, but new foods began to give him problems. He could eat red apples, apple sauce, and drink apple juice, but green and yellow apples made him break out in hives. He could eat green pears, but brown pears also gave him hives. Although he can now have brown pears, he still cannot have yellow and green apples.

Allergy - Apples

As he got older, he also developed allergies to grasses, trees, flowers, dogs, cats, horses, mice, and dust. His peanut numbers kept going up, and he started to develop allergies to all the other tree nuts. As you can imagine, grocery shopping has changed for us multiple times and can take forever!

Allergy to TreesAllergy to Grass

Well, we recently moved and saw a new allergist for the first time in ten years. He ran a complete set of tests – 56 skin pricks on his back! He was miserable by #10! He was reacting to almost everything. In the five columns of pricks, one of them had hives so big that they merged into one large hive. It was all I could do to keep him from scratching!

Allergy Skin TestAllergy skin Test - 1Allergy Skin Test - 2Allergy Skin Test - 3

He ended up testing positive to so many things with this test; and then he had to undergo the blood work! Between the two, we had several new things; so many that he would have very little to eat if we eliminated everything. He had been having some strange reactions lately, so we decided to do some sort of elimination diet. LegoFan tested positive to allergies to wheat, barley, rye, and oats. So we decided on a gluten free diet for a month…

This post is linked up with Our Simple Farm, Homemaker’s Challenge, Whole New Mom, Home Sanctuary, and Allergy Free Alaska – go check out what everyone else has this week!

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2 comments

  1. Elizabeth C says:

    Hey Heather,

    First of all after readying this post I couldn’t believe the similarities between your son and one of my daughters. Her back was just as inflamed as your son’s. We went gluten and dairy free with her for almost a year; this was several years ago. The journey was at first HARD, but it did make a difference with her eczema. It was pretty severe. We’ll be praying for your son!!!

    Also, I was wondering if you ever emailed me about the Evert books (from the book swap). If you changed your mind that is totally cool. I’m trying to catch up to the emails and responses and I didn’t want to leave you out. Let me know either way. :-)

    • Mama says:

      Hi Elizabeth – We haven’t gone dairy free as it seems to be one thing to which he has no negative reactions. It is difficult to find things he likes and can eat. But we’re learning! And he’s improving. Thanks!

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